We do like a day out

A couple of people have asked me what it’s like to have chemotherapy. They are not talking about the side effects of which I’ve discussed/droned on about previously in this blog and am likely to do so again. Instead, they are asking about the process so here’s a little “day in the life of” for chemo days. Be warned: it’s a bit dull and there isn’t much art.

I am having six doses over eighteen weeks, so once every three weeks. My fourth session was last Friday. The key is the blood count. Either the day before or that morning, I have a blood test to check that my white blood cells have sufficiently recovered from the last dose. There is concern that I’m not left too vulnerable to infection, and once my treatment had to be delayed until said blood cells had reproduced sufficiently to protect me from unnamed enemies.

Assuming all is well, I then wait around while the drugs are prepared. This takes an hour or so because, understandable, the NHS doesn’t want to waste money on drugs that are not going to be used. If I’m with my friend, we usually take a spin round the neighbourhood while we wait: have a coffee, buy M&S groceries for the St Paul’s protest, see if there’s anything happening at the Central Criminal Court. Once we visited the Postman’s Park, and looked at the plaques to commemorate people who died saving others. Here are a couple.

 

 

 

 

 

 

 

 

Back at Barts, I am seated in a day ward. There are about eight chairs in a ward, each with a less comfortable guest seat. The chemo chairs are a bit like those the fat people float about on in Wall-E. A nurse then injects a line into my hand through which, over the next couple of hours, anti-sickness medicines, plus three different chemo drugs and a number of flushes are then pumped. One of the drugs looks like this.

I don’t really feel anything as the drugs are going in. Sometimes they are a bit cold.

As the time goes by, I chat to my friend, who does like a day out. Sometimes we talk to other patients and their companions. There is discussion of wigs, of course, all of us saying that we never could tell – which is usually true – and of journeys. Most people have come from miles away – a two and a half hour journey from Brighton, for example. I feel somewhat guilty that I am just three underground stops away. Being wary of hearing too much about what other people are going through, I try to avoid talk of treatments. I really don’t want to hear about anyone who has secondary cancers or whose treatment is not going splendidly. But sometimes you can’t help it. On Friday, I chatted to two women who do have secondary cancers, which was not ideal, but, on the other hand, they were both in their 70s and had been cancer free for fourteen and twenty-six years, the latter of which seems pretty good to me. (I don’t know how a cancer is even a secondary cancer after 26 years but I’m not ready to ask those kind of questions yet.) This is one of the reasons why I need my trusty friend with me. She is very good at telling me not to build my story onto the stories of people I have never met before and know nothing about, which is a massive temptation.

While we chat, the NHS goes about it’s business brilliantly. On Friday, I was offered coffee and biscuits, followed by sandwiches and fruit, plus a volunteer trolley with newspapers and fancy treats. The nurses are amazing. I know this is a horrible cliche but it’s true. The time before, the lovely Finnish nurse spent ten minutes discussing the pros and cons of invading Finland. Who has time for that? Twice the hospital social worker has been round, both times talking to older gentlemen who were living alone and in need of some additional support. I don’t know how well that support gets delivered but, considering something really horrible is happening to everyone in those chairs, there is a gentle, we’ll get through this, atmosphere.

I leave with a bucketful of medication to help with side effects, and afterwards, my pee is red for a while.

I know Disney won't like me using this picture but here we go anyway.

 

Scars, arms and saying thank you

I have matching scars under my arms. The first has been there since I was about ten. Clare McMullen and I invented a game where we looked after leaves. We made them beds in match boxes and polished them with milk. We had toys and no reason to be looking after leaves like babies, but still, this was the game. To gather a new leaf, I was climbing on some railings in the forbidden zone at the edge of our playground, when I slipped and the pointed end of the rail went into my arm-pit. There was lots of blood and general hysteria. I remember putting my hand under my arm and feeling a hole.  Our headmaster, the perpetually cross Mr Roberts, put me in his VW camper van and drove me to the local hospital, where I was stitched up, given a tetanus jab and provided with an odd string-vest. Mum came to meet me and I got an Orange Maid ice lolly on the way home. For a couple of weeks, I was something of a star at school. I had to stand up in assembly, Mr Roberts using me as an example of what can happen if you break the rules, but that only added to the excitement of the whole incident. My mum received phone calls from other parents who had heard ever more exaggerated and fantastic accounts of the incident: my arm had been severed; the railing had gone right though my arm pit so that I was left dangling. In fact, it was all rather straightforward. I returned a couple of weeks later to have the stitches removed. I think I kept them.

Now I have a scar under my other arm. This is where the surgeon removed some sample lymph nodes during the lumpectomy I had in the summer. Much less fun.

Last week, I went to the Welcome Collection on Euston Road to see Infinitas Gracias: Mexican miracle paintings. This is an exhibition of small paintings, commissioned by families or individuals to thank saints for helping them through bad times, or, as the blurb says: Mexican votives are small paintings, usually executed on tin roof tiles or small plaques, depicting the moment of personal humility when an individual asks a saint for help and is delivered from disaster and sometimes death. The paintings cover all kinds of dramas, from lightning strikes to gunfights, motor accidents to false imprisonment, and, of course, ill-health.

Sr Simón Jiménez and all his family give thanks to Saint Francis of Assisi with this humble retablo for saving him from a certain death after being run over by a bus on 2 October 1955. Simón Jiménez and family. (Monterrey, Nuevo León).

It made me think about being grateful. If I get through all this chemo and surgery and go on to live a reasonably long life, I think I’ll be grateful everyday, although I suppose, as time goes on, I will stop being grateful everyday and just be grateful every other day, such is the way we forget. I hadn’t thought about the leaves and the railings and Mr Robert’s VW van for an age, and I can’t say I’ve ever been conscious of being grateful for that safe delivery.

I know there are quite a few people praying for me and, to be honest, while I am nothing but skeptical about the power of saints or God to save lives, there is a little bit of me, the “whatever it takes” part, which is thankful. The fact that these disasters and illnesses happen in the first place seems so unfair and random that choosing to thank someone equally random for getting you through it, even if it is a long dead man who helped animals, doesn’t seem so odd to me.

A bit too soon to commission my own tile but fingers crossed (ah, see how far I’ve some from similar superstition), I’ll be looking for a willing artist in the not to distant future. And rather than a saint, mine will feature surgeons and breast care nurses and people of science who are even now working their own miracles – well, touch wood, etc.

Take a look at some more of these rather wonderful votive thank yous and I think you will see what I mean.

I didn’t know that happened. Well, now you do. No.1: Sore Tongue

Without wanting to stray into the area of too much information, I have been told that I need to say more about things that are happening to my body. I’ve avoided this a bit because I don’t want this blog to be a big cancer moan. On the other hand, two people who have been really helpful to me, Gail and Cheryl, are women who have been through chemo themselves and who have been generous in offering reassurance when I send yet another frantic text outlining some new symptom. “Oh yes,” they say. “That happened to me,” and I calm down. As Gail said to me, having chemo gives you a grounding in health issues you never imagined to be relevant.

So the following is offered in the spirit of: 1. I didn’t know that happened, and 2. Well, now you do.

In the previous post I mentioned having thrush on my tongue. The problem with chemo is that it doesn’t know just to attack the bad multiplying cells. Instead, like a child who’s had too many fizzy drinks, it runs rampant, having a go at pretty much anything. In particular, it likes fast growing cells – good, in that we want it to nut any quickly developing bits of cancer, but bad, in that this is what causes your hair to fall out, for example.

Back to my mouth. In case you don’t know, oral thrush is an infection of a yeast fungus called Candida albicans in the mucous membranes of the mouth. It doesn’t become a problem until there’s a change in the chemistry of the oral cavity that favours candida over the other micro-organisms that are present and, wouldn’t you know it, chemo prompts those changes. Bugger. Babies and denture wearing folk are also prone to getting it.  The result – an ugly white sludge. It feels as if someone has taken a razor to the top layer of my tongue and then tried to sandpaper the surface. Rather spitefully, that same person has then sprinkled a nasty tasting something on to what remains.

The GP assures me that oral thrush is actually very common and seemed surprised that I hadn’t had it before, so maybe, after all, I have lived a very sheltered life. He had given me an oral suspension, which I have to leave on my tongue several times a day and not talk for a while. Very much hoping this will do the trick.

Other mouth issues can include ulcer like sores, a few of which I had during the first lot of treatment but haven’t had since,  and a dry mouth. The lovely Gail told me she was given artificial saliva. Who knew? I also suspect I am drinking way too much orange and grapefruit juice because the sharp flavour cuts through the thrush nastiness, hence storing up a host of teeth issues. Hey ho! One thing at a time.

And, as you know, I like to give you a bit of art. So here is Robert Maplethorpe’s Clothespinned Mouth  1978, from the Tate’s collection. Apparently, it is more about sado-masochistic fetishes, the S&M scene of the 1970s and Mapplethorpe’s strict Catholic upbringing than it is about oral thrush, but it works for me.

Sore mouth

Thoughts on endurance following a visit to Tate Britain

Me, minus tattoo and obviously without hair

This is pretty much how I’ve been feeling for the last week (Woman with an Arm Tattoo, 1996, Lucian Freud). I had my third chemo last Friday and this time has been somewhat rougher, a bit like a poisonous marshmallow has been pumped into my head and is expanding to fill all possible brain space. For several days, I have sat on the sofa for eight straight hours, watching episodes of Poirot and House of Elliot. I have thrush on my tongue, queasy rumbling in my tummy and would wrestle your grandmother to the floor for a whole night’s sleep. (Mr Davies says I have to say it like it is, and not always be, “Oh, yes, it’s not that bad really.” Fair enough.)

But today I am starting to feel better, at bit more like this:

Cloud Study, 1822, John Constable

I had a nice cup of coffee with Mr Fairhurst this morning and discussed the epic saga that is Australian Masterchef. Then I wandered around Tate Britain, dodging school parties, art students and the elderly, the only people in art galleries at ten on a weekday. I recommend the Don McCullin photographs, Mark Wallinger’s Threshold to the Kingdom, and Peter Doig’s Echo Lake. Then I had to have a sit down.

Chemo is a bit like having a baby. You have just enough time to forget how awful it is before they shoot you up again. I assume this is the only way to ensure that anyone comes back for another go. In the words of Harry Venn in the recent BBC drama, Hidden: “There are some things you just have to see through to the end. That’s all you can do.”  For sure, this is one of those things and times and while part of me thinks no one has ever had it so bad, I also know that isn’t true.  Only this morning, I found myself quoting Harry to Rex300, who would have given anything – ANYTHING – to not have to go swimming with the school today. I don’t think I felt any worse than he did. Rex3000 hates swimming lessons with the kind of immediate dread and passion which I haven’t felt since childhood, until that is, this treatment. He clearly thought I was bonkers, but it is what awful swimming lessons teach us, I suppose.  Shouty teachers, shivering at the edge of the pool, and not enough time to do up a top button and tie a tie, all to be endured.

And when we’re all through all this enduring, I’m very hoping it will feel like this:

Melanie and Me Swimming, 1978-9, by Michael Andrews

Tate Britain

Mr Davies’ Overcoat

Last week, I was feeling better, so went to see the Degas exhibition at the Royal Academy, followed by the Museum of Everything in the basement at Selfridges, sort of extremes in the exhibition world. I liked them both. For those not familiar with the Museum of Everything, the exhibition is “an initiative to highlight the role of progressive art workshops for artists with developmental disabilities.”   There were loads and loads of good things to see, all for a suggested donation of £2.00. I particularly liked the portraits of US presidents (didn’t take down the artist’s name – apologies) and the grappling wrestlers of Tomoyuki Shinki. Unfortunately, this exhibition has now finished but well worth watching out for next year.

Degas and the Ballet was a bit of a surprise to me. I’m not a big fan of dance but went along because a good friend asked me and she has access to the members’ tea room. Came away with a couple of thoughts.

1. The exhibition is pretty interesting. Lots about how Degas’ ballet paintings coincided with the birth of photography and film, both of which he used to examine movement and thus prefect his own work. I didn’t know anything about Étienne-Jules Marey, a Parisian doctor who studied movement both in animals and humans. The exhibition includes some of his great models of birds in flight, like this one.

Marey also made films using first his rather spendid photographic gun.

Then, in 1882, he developed a chronophotographic fixed plate camera, equipped with a timed shutter, and finally a camera which used a film strip to record the progress of movement. His films included the falling cat and repeated shots of movement such as this one of a man flexing his arm. All quite lovely and good to see bodies working well.

2. As anticipated, the tea room was nice, although somewhat drew attention to my age – full of ladies of a certain age, generally post retirement, either with husbands or meeting other ladies of a similar certain age. There was general feeling of people having a day out – an exhibition and a bit of lunch, followed by a little light shopping in Fortnum and Mason and a book from Hatchards. And why the heck not? Getting old, going out and about, doing things you enjoy, this is something I want. Being sick doesn’t make me fear old age and its inevitable limitations, but rather fear that I won’t get to be old and experience all that. Perhaps, having had a taste of it, I should worry about being infirm and not as I once was, but in lots of ways I’m already there, certainly the “not as I once was” bit.  Surviving enough years to be old, well, that will be living the dream. If I can get through all this rubbish now, I look forward to pointing at pictures with my walking stick and helping an elderly Mr Davies back into his overcoat after a post-exhibition cream tea.

Friends

One thing I think I have talked about before is how much support I am getting from friends during all this rubbish. You have been outstanding, (as have family, before they start). I’ve been amazed at how considerate people are, and the time they are prepared to give to helping me through all this. All to be hurrahed about.  Made me like this picture.

The Two Friends

This is The Two Friends, by Toulouse-Lautrec, painted in 1874 and it’s kind of how I feel.  Hugged and and loved. Hoping that in due course that I can be the hugger instead of the huggie for all you lovely folk – although hopefully not in the same circs. You can find this picture in the National Gallery. (And just to say, while it may be a picture of two prostitutes, that doesn’t reflect on any of my friends.)

However, all that is a bit mushy, so here are odder pictures of women together.

Not hugging

According to an inscription on the painting, it shows, ‘Two Ladies of the Cholmondeley Family, Who were born the same day, Married the same day, And brought to Bed the same day’. According to the Tate’s website, “the format echoes tomb sculpture of the period.” All a bit odd, and again with the nightmare, uncomfortable clothes. We don’t know who the artist is but he was probably from Chester, close to where I was brought up. It was painted about 1600. You can see this at Tate Britain.

Even stranger is Gabrielle d’Estrées et une de ses soeurs, again by an unknown artist and from around 1594.

Strange

The picture shows Gabrielle d’Estrées, mistress of King Henry IV of France, sitting up in a bath, while her sister sits beside her and pinches her right nipple. Apparently, this pinching symbolizes Gabrielle’s pregnancy, and is about the milk the breast will produce. I’m quite glad we ladies are no longer celebrating news of a pregnancy in this manner.

I haven’t actually seen this picture – it’s in The Louvre – but it was suggested to me by Liz, one of the friends so praised above.

 

 

 

 

 

Masterpieces

Some famous people have been choosing paintings which they suggest answer the question, what makes a masterpiece? You can see what David Hockney, Phillip Pullman and some art people I don’t know about have selected on the Guardian’s site.

I particularly like what David Hockney says about his choice, Mother and Child, First Steps (1943) by Pablo Picasso and similarly how architect, Amanda Levete, describes her selection, Still Life with Lemons and Oranges (1633) by Francisco de Zurbarán. They both make me go, “Oh yes, now you tell me, I get that too.”

Two things I would note.

1. I am doing my best to ignore art historian, Tim Marlow’s, selection, Hans Holbein’s Dead Christ (1521). I mean, amazing, obviously, but not something I want to contemplate right now.

2. Culture minister, Ed Vaizey, chose The Arnolfini Portrait, which I have previously mentioned on this site – the one where the lady isn’t pregnant, just showing off with lots of cloth. He does point out (in the newspaper, he did anyway) that the faces of the Arnolfinis are almost alien. Rather true, I think. Apparently, he often pops into the National Gallery to see this paintings, so look out for him.

(There may be too many links in this post. This is to show off to my friend, Pamela, that I can do this.)

The Wisdom of Alan Measles

I popped into the Grayson Perry exhibition at the British Museum this morning and really liked it. In the artist’s words, The Tomb of the Unknown Craftsman, “is a memorial to all the anonymous craftsmen that over the centuries have fashioned the manmade wonders of the world.” As you may know, the British Museum let Grayson Perry pick items from its collection and match them with works created by the artist himself. It’s funny, Grayson’s stuff is amazing, and it’s a great way to see a manageable amount and range of things from the British Museum’s huge empire. You can see more about this here. They should do this with other artists.

Nice pot from Mr Grayson

I particularly enjoyed the participation of Alan Measles, the 50-year-old teddy bear, dictator and God of the imaginary world of Grayson Perry. Alan and Grayson went on a motorbike tour of Germany, Alan enclosed in a Pope-mobile type chest.

Mr Measles

I was struggling to relate any of this to why anneiskeepinbusy, but then I turned to Alan Measles’ blog: “we are all a bit mad, we need to tolerate a measure of un-certainty. What helps is becoming interested in something, it does not matter what, collecting crisp packets, country dancing, Christianity, kinky sex, whatever snags your enthusiasm. Those marvelous, enthralling, difficult to grasp peak experiences in life happen while you are wrapped up in something else, hunting out the last in a set, losing yourself in the rhythm, joining a congregation or spending the weekend mummified in duct tape. Sorry to go on so but I want you to be happy.”

So there we are. Read more of Alan Measles’ wisdom here.

To answer the critic (you know who you are)

I have received a complaint that I am making cancer sound too pleasant. This comes from a source close to home, who specifically asked me to discuss my recent constipation. A challenge. To be honest, the best I can do is this:

The Adoration of Captain Shit and the Legend of the Black Stars (Part 2) 1998S

This is a painting by Chris Ofili, who won the Turner Prize in 1998. Apparently, it’s a picture about lots of things – art history, the Bible, hip hop, black sexuality. and superheroes. What it’s not about is constipation brought on by anti-sickness drugs. However, like other of his works, it does feature poo, albeit elephant dung. According to the website, Culturekiosque.com, Ofili has said that the important thing is to know whether art is good art or bad art, not whether it contains elephant poo. As is being made clear by these entries, I don’t have much idea of the former but I am a bit interested in the latter (sorry, Mr Ofili). So, for those of you with me, at first the poo was said to have been smuggled in from Africa, but latterly came from London Zoo and was dried in an airing cupboard.

This picture:

Holy Virgin Mary

painted in 1996, caused a huge bruhaha in New York when displayed as part of the 1999 Sensation Show. The painting depicts Mary as a black woman with an exposed breast made from elephant dung and surrounded by butterfly cutouts of female genitalia from pornographic magazines. The then mayor, Rudolf Giuliana, said, “The idea of having so-called works of art in which people are throwing elephant dung at a picture of the Virgin Mary is sick.” I quite like the idea of being able to throw elephant dung at paintings but even here I don’t think that’s what was on offer. Indeed, someone else who I’ve just found on the internet, Michael Davis, an Art Historian at Mt Holyoke College, argued that, “Ofili depicts her features and uses elephant dung to connect her in a basic way to the African earth and its people. After all, Mary is as much theirs (Africans’) and his (Ofili’s) as she is Giuliani’s…. one must move beyond the collage’s materiality… to wrestle with the concept, imagination, or spiritual expression that have brought it into being.”

Wanting to bring this back to my own pooing issues, I can only suggest that I am doing my own wrestling, albeit rather less spiritual.

(I get the feeling Mr Ofili is a bit over the whole elephant poo thing. Fair enough. He would probably prefer you to read this: http://www.guardian.co.uk/artanddesign/2010/jan/16/chris-ofili-gary-younge-interview).

Hair Envy

As you can imagine, I’m a little hair obsessed these days. I am almost to the point where I can count individual hairs still courageously clinging on to my head. Brave little souls. The new cry in this house is, “People, I’m taking my hair off – get ready.” Yesterday was first wig washing day. Went well – in some ways, a lot less trouble than washing my real hair – but still, all a bit unusual and, if I can suggest, not ideal.

All of which makes it not that surprising that I was drawn to this picture during my last National Gallery pop-in.

Showing off re hair

This is Combing the Hair (La Coiffure) painted in 1896 by Degas. Obviously, this lady has way too much hair for my taste (at the moment) but I take some comfort in the pain the maid seems to be inflicting on the lady during this brushing process. The notes suggest that “the relationship between the women is ambiguous: in some ways, the maid is the more  powerful at this moment,” and the mistress does seem to be holding onto the top of her hair, the way little girls do when a parent is trying to drag a comb through their hair.  In terms of art (rather than hair), the National Gallery like this painting because Degas does a great deal with tone and shade, just basically using red and grey.

As I’m sure you all know, Degas painted lots of pictures of women brushing their hair. I could show you one of those but prefer to reproduce the above painting in the form of a French Impressioniste tie design.

Art for the people